Showing posts with label spoonies. Show all posts
Showing posts with label spoonies. Show all posts

The MRI I Almost Had, And the Rape I Almost Didn't Mention

They weighed me at the hospital yesterday. I'm 283 pounds. The lightest I've been in a year, by at least 30 pounds.

The nurse congratulated me when I mentioned the weight loss. I said, "That's not worth celebrating. Relief of my symptoms would be worth celebrating".

"I'm sorry for snapping," I apologized. "It's just... Every medical professional I've seen has focused on my weight instead of how I feel. My weight is one of my symptoms, not the cause of my problems. I don't care how heavy I am. I like how I look. I hate how I feel".

He nodded, trying to avoid angering the fat lady any futher. 

After asking a few routine questions about whether I'd eaten in the last 10 hours, whether I was wearing anything metal, the usual, the nurse informed me that we'd have to do a "dry run" to make sure I wasn't too big for the MRI machine.

"I thought the weight limit for these was at least 400 pounds?"

"Your weight won't affect the machine. It's your size".

This hadn't occurred to me. I'd heard horror stories about people my size not being accomodated by medical equipment. I was almost, but not quite too big for a massage therapy table a couple times. But I didn't think utter disregard for fat peoples' health was this pervasive. 

"I'm the smallest I've been in a while. Let's try it".

I limped to the MRI machine (I had to leave my metal cane outside and hadn't been offerred a hand, which should have been a red flag) and swung my body onto the bed. It was narrow, but I fit okay, if I crossed my arms over my chest. 

Without warning, I heard a violent buzz and the bed was lifted multiple feet into the air, into the machine. The walls of the MRI pressed into my chest and stomach. I could barely breathe. 

"I don't fit. Let me out please," I said, trying to take a deep breath. But my body kept sliding back further into the tunnel, my stomach pressed hard against the machine. 

"Hey! Let me out now! I don't fit". I tried to bang on the walls, but my arms were pressed too tightly to my body. All I could do was yell until the technician finally relented and let me out. 

I rushed out of the room, grabbing my cane and trying not to cry. 

When I reached the waiting room, I shook my head and told my mom, "medical devices aren't built for people like me. People who are slightly larger than average. A huge percentage of the population... I could have cancer or something in my small intestine and they can't see it because their machines aren't made for people my size. I could die because society says I'm too big to recieve adequate medical care!"

My mom turned white and started to pat my back. "I'm sure it's not cancer. They'd have found it," she soothed. "We'll figure it out".

This whole time, the technician was blabbing, but I was tuning him out. I didn't care what he had to say. He wasn't sensitive to my damaged ankle, or my anxiety disorders (which I'd disclosed to him) or to my size. 

I kept ranting, a mixture of rage and fear and humiliation running through my veins: "And he--" I pointed at the technician, "kept trying to squeeze me into the machine. I kept saying no. And then shouting no. All I could think was that I'd die in that machine, and about how this is exactly how I felt when I was raped".

The room went silent.

~

I'm not the only person this has happened to.

I won't be the last fat person who was denied medical care because of their size. 

I won't be the last survivor of rape who's triggered by an idiotic man taking "no" as an invitation.

I won't be the last fat, disabled sexual assault survivor, either. (And that's a hell of a unique intersection). 

Something has to change. And until spoonies start advocating for ourselves, and fat people demand adequate care, and women start speaking the fuck up, the world will keep going, just the way it has been. 

And someone else will lay in bed at home in the fetal position, praying for a higher dose of Tramadol and to erase all the memories of abuse they've faced-- at the hands of lovers and medical professionals alike.

Sweater (Dress) Weather

As cooler weather approaches, there are a few things I know for sure: Fall foliage will make up 50% of my Instagram feed, salted caramel and pumpkin spice are everywhere, and sweater dresses are in again.

Sweater dresses are the perfect item for the stylish spoonie; they're comfy, often affordable, and easy to wear without effort and without looking frumpy. If you get cold easily, layer it. If you overheat, roll up the sleeves or pick a lighter fabric. Accessorize or don't. Rock colour, patterns or neutrals. It's that simple!

Here are some of my Autumn 2014 sweater dress picks:
Sweater Dress Weather

Panic Is a Pain for Everyone It Touches

My mom had suggested we take a walk, and I was looking forward to both the company and the fresh air. 

"I'll meet you outside," she said. I smiled and replied that I'd be just a minute. I put on my shoes and grabbed my purse. Just as I was about to leave the house... Panic attack. Accompanied by physical illness.

I started hyperventilating, praying this wasn't happening, Beads of sweat formed on my forehead. I suddenly felt like I was going to fall over. All typical panic attack stuff.

Maman rushed back into the house when she heard me, held my hand and wiped my forehead. "It's okay. Just sit and relax. Have a Gravol. We'll go out another time". 

"No, I know how much you wanted to go for a walk. I'll be fine. Just give me a minute". 

"It's okay. Don't push yourself too hard. I'm not mad".

I was calmed by her words, and yet... I felt even worse than I had when I was bent over the sink. Not only are my anxiety disorders interfering with my life; they're making hers more difficult, too. And I know it's not my fault, she loves me no matter what... But sometimes I hate myself just a little bit because Panic is a pain for everyone it touches.

Do you ever feel guilty because of your anxiety disorder(s)?

Why I Won't Go Gluten-Free

I've heard incredible stories of spoonies becoming practically symptom-free thanks to their new gluten-free diets. Whether they're embellishing or not, both research and anecdotal evidence do show that there's something to the gluten-free craze. However, I'm not joining the bandwagon. Here's why:

1. It's not a sure thing. There's no such thing as a sure thing in treatment for chronic illnesses, but... Cutting out gluten and waiting months, or even a year, to see if it's helped at all is not for me. I'd rather continuing exercising and eating healthy when I can, practicing self care and taking my medications. That's the closest there is to a sure thing for a spoonie.

2. I don't have the strength. Gluten-free eating takes careful planning, grocery shopping and cooking or baking. You can't just buy a frozen pizza or pick up a sandwich at the cafe down the street; you have to diligently read the ingredients to be sure no gluten is lurking in your food. Eating out, even in a metropolis like Toronto or New York is difficult. And all your go-to recipes need to be altered. That is, if you have the spoons to cook in the first place.

3. It's expensive. If you don't have the strength to prepare your own gluten-free meals (see #2), you're stuck eating out at one of a handful of celiac-friendly eateries or paying an arm and a leg for prepared foods sans gluten. Many spoonies, including myself, aren't able to work as much as they'd like, and don't have the funds to keep up this lifestyle.

4. It's triggering. As someone who's had an eating disorder, I find cutting anything out of my diet incredibly difficult (emotionally). I can't help but be dragged back to that place in my mind where I think, "if I'm cutting out gluten, maybe I'll lose weight! Maybe I should cut out dessert too! And this and this and this! And then I won't be fat anymore, people will accept that I'm not lazy; they'll realize I really do have a legitimate illness. I'll finally be thin and acceptable to society". And then I can't get out of that head space. Do I really want to risk it, for a chance that I won't be as tired or sore? No. My mental health is just as important as my physical health.

5. I have no definitive medical reason to stop eating gluten. Is the huge lifestyle change of cutting gluten from my diet worth the slight chance that my health could improve a little? Definitely not.

6. I love bread. I know this might be kind of a silly reason, especially compared to the others on this list... Besides, gluten-free bread exists. I've tried it. But it's not the same. If I had to subsist on it I could, but I absolutely love food and I'm not giving up my favourites without reason. No sad salads for me!

Are you gluten-free, or would you try a gluten-free diet?

Oh what a wonderful morning!

Good morning, Sparklers!

I'm having my best morning in ages. Months! I am so happy I'm probably glowing.

I slept a lot yesterday, so I was up by 5:30 this morning. I curled up beside my mom and cats (all of whom were fast asleep) and read a bit of Jane Eyre (which I'm rereading for the first time since I was 16), played around on Tumblr, and just relaxed. My mom had to leave for work early today, so I left with her around 7. I went to a diner near my house and had eggs florentine and coffee while reading and writing. Then I ran errands, went for a walk (it felt so good to exercise!) and came home.

Now I'm sitting on my bed, listening to HIM, about to get to work on some social media tasks. My cats are sitting with me again, both probably surprised by how alert I am, or the fact that I'm actually wearing pants (not pyjama pants) and a bra.

So I just thought I'd type out a quick blog post to you, my darlings, because I've learned something this morning:

A good day can just happen, out of the blue. And you can make it happen. Even if the weather isn't great. Even if it's still winter and you have SAD. Even if you were depressed yesterday. Every day is an opportunity to create a good day. And even if you don't succeed, doing your best with the spoons you have is what matters. 

Seize the day, mes chรจres!

Image Via

Spoonies vs Winter: A Love-Hate Relationship

I love winter. Fresh-baked gingerbread. Wearing slippers and sipping hot chocolate while I write, cats nestled by my side. Holiday dinners with family and friends. Christmas trees, menorahs, fluffy snow everywhere...

But I also hate winter. Daily panic attacks because of the weather. Scrubbing my hands until they're raw, because the person sitting next to me on the bus coughed. Fearing I can't pay the heating bill because I'm underemployed but still was turned down for disability. Icy fingers and toes (which is saying something, for an anemic). Being sad that I don't have the strength to toboggan or snowshoe like I used to.

Thus is life for a spoonie; things you once enjoyed, you can't as much (or at all); things you once paid no mind to, make life incredibly difficult. Winter also brings Seasonal Affective Disorder (or symptoms thereof), additional expenses, like heating, boots and warm clothes (difficult to afford if you're un- or under-employed thanks to a disability), and unfortunate run-ins with family members who don't 'get' the illness you're dealing with. And every day, you're forced to struggle with pain, fatigue and stigma on top of it all.

Do you have a love-hate relationship with winter? How do you cope?
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