Why I Waited Until 25 To Get Diagnosed With OCD
Happy BFRB Awareness Week!
1. Spread the word. Take to social media or speak up in your (IRL) social circles. Start a discussion about the prevalence of BFRBs in your community. Talk about your own experiences, if you're comfortable doing so. Share blog posts like this one.
2. Donate to an organization like Trichotillomania Learning Center, to support ongoing research and community outreach for people with Trich and related disorders.
3. Download TLC's free hair-pulling and skin-picking awareness cards (BFRB awareness card pictured above) and hand them out.
How are you spreading the word about BFRB awareness week?
What Not To Do When Your Girlfriend Has a Breakdown
Borderline vs Balance
How To Deal With Anxiety Relapse
Why I'm Heartbroken About Cory Monteith's Passing
What I Learned At Trichotillomania Learning Center's Annual Conference
Don't compare your problems to others'. Who's to say pulling is worse than picking, or vice versa? Besides, comparing issues is a waste of time that could be spent working toward a solution.
Beating Panic Disorder: Stop Giving Into the 'Shoulds'
Tuesday morning, I get on the bus expecting an uneventful ride, but there's a guy picking his nose and wiping it on the back of a chair, then coughing. A germaphobe's nightmare. So I get anxious.
Then I walk from the coffee shop to the grocery store, and it's hot out compared to the temperature inside, and I have a slight headache. Instead of thinking the weather's wonky today, I think "I'm sick, I'm gonna panic, and I'm gonna die". It's irrational, but it's often the anxious person's thought process.
And I feel so small. I had a panic attack today! That's pathetic. I'm pathetic.
But... If we stop giving into the shoulds and start embracing how far we've come, how many panic attacks we haven't had today, we'd be a lot healthier and happier.
I think I'll give that a try. Will you?
Hello, Spring!
Spring is a time of newness and rebirth-- both in nature and in the lives of those with seasonal depression. Most of us with SAD experience this change in mood in the winter, and begin to feel better as spring comes.
Set yourself up for success this spring by taking these steps:
Take it slow. Don't expect all your energy to return the moment it gets warmer.
Be optimistic.
Try new things. What have you never done before, that you'd like to try? Yoga? Sushi? Planting a garden? Now's the time to do it!
Update your wardrobe. Bright colours! On-trend patterns and cuts. A gorgeous dress or sexy slacks that fit just right.
Get a support network in place for next year. Join a meetup.com meetup for people with depression, see if a local hospital offers CBT groups or create your own circle of friends who 'get it'.
Enjoy yourself!
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Downplaying Invisible Disability
Am I a fraud? Does applying for ODSP (provincial disability aid) make me greedy? Am I fool for thinking I'm part of the differently-abled community, and will be welcomed with open arms? Am I making a big deal out of nothing?
Most of the time I know I have no dishonest motives. I do need help. And I am trying.
This shit is hard. I just pray it will make me stronger.
Trichotillomania Treatment Options & Coping Strategies
If you have trich, some of these ideas might work for you-- I know many of them have helped me!
Treatment Options:
-Cognitive Behavioural Therapy. CBT is known for treating many illnesses, including anxiety, depression and fibromyalgia. I had a huge breakthrough in my treatment for trich during a CBT session, and have encountered studies and individuals who tout its efficacy. Ask your GP, psychologist or psychiatrist for a referral to a certified CBT practitioner for group or individual sessions.
-Medication. The bad news: there's no special pill that will stop you from pulling your hair. The good news: some medications which help anxiety, depression or other mental illnesses can aid in treatment of trichotillomania, too. If you are already on medication for a comorbid condition, chances are its positive effects will spread to your hair-pulling. When one illness is especially bad, others are, too; when one is successfully treated, you'll see an improvement in others, too.
-Alternative therapies. Many people have had success with alternative therapies, such as herbal remedies or different types of psychology/talk therapy. Ask your doctor if one of these may benefit you.
-Support groups. Improve your self-image, meet others with similar situations and share ideas that have helped you cope. This is an excellent way to make friends who 'get' what you're going through, too.
Meanwhile, find some coping strategies that work for you. (These are meant to help control symptoms, rather than treat the underlying illness). Below are a whole bunch for you to try.
Coping Strategies:
-Play with fidget toys-- a slinky, silly putty, a bracelet...
-Talk to someone you trust (especially if they have a similar disorder).
-Create a barrier between your fingers and the area you usually pull from. Wear a hoodie, gloves, bandanna or a hat.
-Pay attention to when and where you usually pull. Sometimes awareness is enough to stop pulling.
-Set small, measurable goals. "I will not pull for the next hour", or "I will not pull more than twice today". Continually raise the bar, and celebrate when you succeed.
-Wear an elaborate hairstyle or fancy hair clips.
-Wear nail polish or perfume. You'll be likelier to notice your hand reaching for your hair.
-Put lotion on your hands. This will make grasping hair more difficult.
-Pet a cat or dog.
-Meditate.
-Try mantras, like "I am stronger than the urge to pull".
-Lift weights, go rock climbing or swim. Your arms will be too tired to pull.
-Keep a journal.
-Know your triggers.
-Practice self love.
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On Choice & Mental Illness
We who battle mental illness will continue to do so for the rest of our lives. There's no cure. That's fact-- Just like we didn't choose to be born with a gene that predisposes us to mental illness, and/or didn't choose to experience the trauma that led to our developing a mental illness.
There is one matter in which we have a choice, though: we can choose to thrive. Some days will be hard. Some weeks, some months, maybe some years. And we might have to work harder than most.
But that's okay.
What I've learned, in my 20 years as a mental illness survivor is that hopefulness, self-love and persistence can take you far. Much farther than you ever dreamed.
Dream.
And then, work toward your goals.
You can do this. Recovery (and a happy life) is in your grasp. Don't let anything (illness or otherwise) stop you. You can do this.
Success or Suicide: On 'Black-and-White' Thinking
When I was 16, I believed there were only two possibilities: by 21, I'd have it all figured out, or I'd be dead.
Around that time I took a CBT class, which went through all the major psychological coping mechanisms. What I didn't know then, was that one of them-- black and white, or 'all or nothing' thinking (also known as 'splitting')-- perfectly described what I was thinking-- and was a symptom of Borderline Personality Disorder, which, at the time, I did not believe I had.
On my way to class each Wednesday, I wrestled with this thought: 'I have to try my best, because this class might be my last hope. If I fail, I'll have no more options and I'll never be able to cope with my mental illness and then I'll have to kill myself'.
No rational thought could stop this pattern. I couldn't process that there's a grey area between success and failure, between success and suicide. That's black and white thinking.
I definitely didn't want to die, and I wasn't being dramatic, either. I was just so depressed, and overwhelmed by my untreated BPD, that I couldn't see a third option.
I wish I could hug my teenage self, tell her to hold on, because there's so much life she hasn't experienced yet. Most importantly, I wish I could tell her that, for certain now, I know therapy works, and antidepressants work, and believing in yourself works.
Whatever stage you're at in fighting your illness, I want you to know this: It's possible to recover. Even if you need medication (or don't). Even if you need therapy (or don't). Even if you don't believe in yourself at first. Even if you stumble sometimes (I know I still do!).
The world is not all black and white. Accept that there's an in-between, and believe that you deserve and can achieve amazing things (including recovery). Then, you'll thrive.
What is Trichotillomania? Q + A
Thanks to Olivia Munn's recent coming out as suffering from Trichotillomania, I'm inspired to write about the disorder which she and I, as well as 2-4% of people are affected by.
What is Trichotillomania?
Trichotillomania (also known as Trich or hair-pulling) is an impulse control disorder which causes the sufferer to pull out hair from her scalp, eye lashes or other parts of her body due to intense anxiety, stress or impulse. Trich is related to anxiety, mood and tic disorders as well as dermatillomania.
Who is affected by Trich?
2-4% of the population suffers from this disorder, although it is highly likely that that statistic should be higher, considering the stigma attached to mental illnesses causing sufferers to stay 'in the closet'. 90% of 'trichsters' are female.
What causes trich?
Like most mental illnesses, trichotillomania's prevalence is impacted by genetics and comorbid disorders, although scientists are unsure what other factors, if any, come into play.
It is not the suffers' fault!!! (extra emphasis highly necessary). It is not a choice, and is nothing to be ashamed of. Like diabetes, depression or an allergy, trich is a medical illness and deserves to be taken seriously.
What treatment options are available?
Unlike physical ailments, mental illnesses can be very difficult to treat. Fortunately, utilization of medication, cognitive behavioural therapy and support networks can make trich very manageable.
What did Olivia Munn say about her experience with trich?
Olivia shared, "I rip out my eyelashes..." She also divulged that she has a comorbid disorder: social anxiety disorder. "I don't think anyone would describe me as weak, but I don't want people to be mean to me... I moved around a lot when I was younger and no one was nice to the new kid. So there is always this feeling that someone will make fun of me". [Source]
What's your personal experience with trich?
I've pulled my hair for as long as I can remember. As a child suffering from Selective Mutism, I often twirled my hair in an effort to self-soothe, and when that didn't work I would resort to pulling out my hair.
Like most trich sufferers, I was completely unaware of what I was doing until I started therapy.
Even now, in my occasional bouts of hair-pulling, I am often unaware of what I am doing until I've started.
I'm happy to say that with a mixture of learning healthy self-soothing techniques and treating my comorbid disorders, my trich is largely nonexistant.
There is hope!
More information:
Request information about hair-pulling from Trichotillomania Learning Center
Follow Olivia Munn on twitterFollow me on twitter & ask me anything!
Remembering a Bad Day
This is a page from one of my old journals. Trigger warning: self-injury.
Finally, I could breathe. It felt like I had been holding my breath for months and could at long last, exhale.
With every cut came ecstasy.
With every healing wound, the cold realization of what I had done.
I wasn't ashamed, but I knew my family would be disgusted. And that hurt. Why couldn't they accept that I couldn't digest my emotions and cope with experiences like I used to before?
Before. Before was a long time ago. Before the sickness. Before Borderline and anxiety and depression and high school and my parents' divorce.
I'm in recovery now. It's been years. But every once in a while, there's an itch beneath my skin that I fear only a razor can scratch.
Emetophobia (Yesterday's Panic Attack)
Was I going to die here?
Was I going to go crazy?!
I threw myself to the ground, sat cross-legged and clutched my purse. I rummaged for my container of pills and grabbed a tiny blue one, shoving it into my mouth.
Breathebreathebreathebreathe.
Just as I swallowed the Ativan, I started to wretch, my throat burning and my mind screaming "it's the end of the world! it's the end of the fucking world!" until it went black, my head making contact with the building behind me just a little too roughly.
_
Okay, so I'm alive today. That means it wasn't the end of the world. But for a good hour (that felt like an eternity), I was certain it was.
I suffer from panic disorder. This was a panic attack. One of the symptoms is stomachache. And it escalated, because....
I'm emetophobic. I have a severe, clinically diagnosed phobia of illness and vomitting.
Even typing that 'v' word I feel a little (read: a lot) queasy.
This phobia is something I've struggled with all my life.
Every single year of my existence, flu season has been torture. Unless you have a phobia like this, you have no idea. Every moment of the winter, I'm petrified. 'If I sit next to her on the bus and she's sick will I get sick and throw up and panic and die?' Or 'he just coughed so he's got a cold and he's going to give me his cold and when he gives me his cold I'm going to start coughing and coughing makes me anxious and I'm going to cough to hard and it will make me throw up and then I'm going to implode!' On and on it goes.
When people complain about getting over a stomach bug, I try to be comforting and happy for them but inside, I feel nauseaous and anxious.
When I go to the movies, even amazing Oscar-worthy movies like Bridesmaids, I have a great time until the scenes with 'jokes' about puking. Then I feel like I'm going to puke. So I excuse myself, attempting to calmly say I have to refill the popcorn or visit the bathroom, when really I'm going to run for the exit and sit outside the theatre and teach myself to breathe again.
When I go to the doctor, she can't use a tongue depressor or take a swab of my throat because that scares me. And I haven't been to a dentist in years. For a while I couldn't even brush my teeth for fear of being ill.
No one in my life understands. A few of my friends and my mom try, they really do... But then they say "I know you don't like vomit but this is really funny...". I'm sorry, it's not that I "don't like" it. No one in their right mind "likes it". It's that I have a panic attack when you mention it. It's not funny. I'm not overreacting.
Just ask Howie Mandel or the International Emetophobia Society. This is a real illness. It's not a prank. It's not a box to tick on your Tumblr 'lol omg I haz these phobias!!1!' quiz.
I can attest that this is not an easy thing to discuss. I've struggled with it for 20 years (that's my entire life) and have never written about it, despite the fact that I write about practically everything. I don't even talk about this with my closest friends and family because I'm terrified they'll ridicule me. I only once opened up about it to a therapist.
So if someone in your life suffers from this (or any other) phobia, take it seriously. Even if you don't understand it, be compassionate. And for the love of God, fast-forward that Bridesmaids scene.
I'm so tired.
I'm in my childhood bedroom. The ceiling lights don't work anymore, the windows stick and the air is slightly musty, but the room looks much as it did during my teenage years.
Magazine clippings, snapshots of my (very few but incredibly loved) friends and artwork I've made are taped to the walls, painted a chipped bright blue.
I'm laying in bed, writing, head resting on my hand.
The room smells old and sad. At least the stench of my ex's cheap cologne no longer lingers.
I'm so tired lately-- and not just because of my chronic fatigue-- the kind of tired that's also emotional, that keeps you awake for days on end.
I have these moments when I'm so depressed, but I can't tell anyone because I'm supposed to be in recovery.
I need someone to love, someone to love me.
I hate talking, even writing about feeling like this, but the truth is, if I don't talk about my feelings (especially the ones that arise due to my BPD), how can I rightfully expect anyone else to be open and honest about theirs?
Emilie Autumn on Mental Illness, Muffins & Her Upcoming Album [Exclusive!]
“I’m not crazy, never was crazy; I’m stark-raving sane”.
The hardest part of a writer's job is when there are no words to describe how she feels. This is the challenge with which I was presented when I sat down with Emilie Autumn.
In this instance, I was not just a journalist, but a peer (survivor of a serious mental illness) and a ‘muffin’ (Emilie's affectionate term for her fans) as well.
This was not my first time meeting Emilie, nor my first time seeing her show. I had been to two prior (one in Montreal, the other in Toronto). At that last Toronto show I met her. Completely starstruck-- a rare event for me-- I hugged her and whispered, "thank you for your music and your words and for being you. Thank you for showing me I will survive too".
This time was different from the start.
_
I had it all worked out: I’d stride confidently into the room, smile and introduce myself.
Instead?
Well, I arrived about 10 minutes early. The venue’s doors were locked. I wandered back to the stage door, where angry (or maybe just very urgent and determined) men were unloading what appeared to be Emilie’s set from the back of a truck.
“You’re not ‘sposed to be here!” one uttered, gruff and exasperated.
Taken aback by his abruptness, I stuttered “y-yes I am. To speak to Emilie Autumn”.
“Wait ‘til the show. Doors at 8”.
“I’m a journalist. Emilie’s tour manager, Melissa and I set up an interview”.
He shook his head and left me alone.
Just then, Veronica (from Emilie’s “scantily-clad girl band”, the Bloody Crumpets) flounced by, blissfully unaware of my nervousness or the man’s annoyance. “Hi, dear,” she smiled as she strode past me.
Melissa arrived at that moment, ushering me inside. “You’ll meet Emilie in ‘the dungeon’,” she grinned. The room, though well-furnished, did look like a dungeon, complete with concrete walls and narrow steps, and very cold.
EA appeared from her dressing room, clothed in a casual outfit and minimal stage make-up. She pulled me in to a hug (she gives the best hugs, truly!) and introduced herself. I explained how we had met before, though not professionally, and she said she had thought she remembered me (though whether she meant to flatter me, I’m not sure. I was charmed either way).
We sat together on the black pleather couch. I had prepared a list of questions, but looked at it only once in our near-hour together: I really didn’t need that piece of paper, because what followed was simply a conversation between fast friends.
First, we spoke about the evolution of the Asylum. What started as an outlet for Emilie to express her pain, sorrow, and her history as a girl affected by mental illness soon developed in to the album Opheliac, an international tour, the Asylum Book, and now the Fight Like a Girl (FLAG) tour and forthcoming album.
“It’s become this whole Asylum world,” Emilie says, “It isn’t just about me anymore”.
She emphasizes multiple times that she is helping herself (through music and art) to help others, and that her victory “is not just for me, but for all of us”.
“This is your third time performing in Canada,” I say, “how is this tour different from the last one?”
Emilie’s show has always been theatrical, akin to a vaudeville show, complete with singing, violin solos (Emilie is a classically trained musician, afterall), skits, acrobatics, burlesque… But the FLAG tour, Emilie exclaims, goes above and beyond. “This show [on this tour] is more intense and dark… a horror story”. She explains that, despite the heavy subject matter of a young woman’s struggle with mental illness and the cruelty of people who don’t understand, it’s empowering and explores the “role of sex and humour in really dark subjects.
“I’m a main character in the story, the story is actually true, but it’s kind of getting to a comfortable place where it’s not directly about me, and Emily, who tried to kill herself. This is what the story is about and this is why you [Muffins] can relate to it. It’s just a good story. For those of us who are in on it, it’s probably something more personal. It’s a big theatrical production where you can just go and be entertained. It’s kept its comedic side… It’s important to balance everything out!”
Upon being asked what her next step will be (after Fight Like a Girl is released), Emilie explains that FLAG is meant to be “the soundtrack to the Asylum musical”. Having heard a few songs, it’s very easy for me to believe this; the music is epic and cinematic, the lyrics powerful and the theatrics are definitely there. As EA says herself, putting her story into a Broadway show “doesn’t seem like a stretch”. She continues, “I don’t need a Grammy; I want a Tony!”.
Oh my tea trays, the Asylum on Broadway! That Tony is sure to be Emilie’s; it’s just a matter of time.
On a more sombre note, Emilie divulges that the song Take a Pill is about her experience being locked in an insane asylum—an experience both myself and many of her fans can relate to.
She laments the fact that most people don’t talk about mental illness. She postulates that most are terrified of even thinking about it, so they judge and criticize those who do talk about it or are affected by it.
“Suicide is considered a crime and you get locked up for it. You’re punished for having survived, and all you wish is you could have pulled it off, could have done better”. That hasn’t changed since the Victorian era (a major theme in Emilie’s work).
“What we’re often referencing in a very dark and sarcastic way [is the Victorian Era]. Most of society has not progressed very much. And that is fucked up”.
Which leads us to this: “A huge part of the Asylum story is this question of ‘who’s really crazy?’.
“I’m not crazy, never was crazy; I’m stark-raving sane”.
Her eyes wide, Emilie says, “escaping the asylum doesn’t mean you’re free. You never really get out. So instead of fighting that, we ask, ‘how do we change a prison into a sanctuary? Change being alone into not alone?’ Unfortunately, you can’t solve the problem of mental illness or being mistreated because of it-- but that also means you don’t have to look to anyone else for the solution. You just have to ‘put one foot in front of the other’. That’s how the Asylum was born”.
Emilie volunteers her love and empathy, exclaiming, “The Asylum is mine and yours and all of ours… And now you”--she points at me—“and muffins everywhere have a cellmate”-- she points at herself—“and a sanctuary”.
My final thought, as I hug Emilie farewell and make my way down Queen Street is this: Emilie is as genuine and emotional and real as she seems, especially when she talks passionately about her wish for a world more understanding of the people in it.
And running through my head for weeks later, is “one foot in front of the other foot in front of the other one…”
| Emilie Autumn | Mental Health @ RebeccaEsther.com | Emilie Autumn on Twitter |
| Rebecca Esther on Twitter | Becca & Emilie |
How To Get Out of Bed When You Just Don't Want To
Some days, you just don't want to get out of bed. Here are some ideas to help you get up & out the door:
-Put your alarm across the room. You'll only be able to stay in bed for as long as you can stand that incessant beep beep beep.
-Promise yourself a reward. A little something special might be just what you need. A latte on the way to work? Flaunting your favourite dress?
-Out of bed but not awake? A cold shower will do it! Very effective at waking you up, plus it's good for your hair and skin.
If your tiredness stems from chronic fatigue or a mood disorder like depression, it will be more difficult to deal with. I know this from years' experience battling depression-induced hypersomnia. Here are some tips for coping with it:
-Make sure it's not medical. Get tested for anemia and sleep disorders, just in case. Both are very common co-morbid disorders, and they may be the culprit behind your exhaustion.
-Motivate yourself. Find something every day to look forward to, even if it's little. This is especially difficult (but especially rewarding) if you suffer from depression. I had a hard time with it at first, but the more you practice, the easier it gets.
-Mantras. I will get out of bed. Today is going to be a fabulous day. On the count of five I'll get up and get moving.
-In your head, run through the events of the morning. Tiny steps are least intimidating. I'm going to get up. Brush my teeth. Get dressed. Eat breakfast. Get in the car...
Good morning, gorgeous! Have a great start to your day!
Image source: unknown.